Women diagnosed with advanced breast cancer feel isolated and unsupported, according to a survey published today.
The women feel they have little in common with women with early breast cancer, according to the survey for the charity Breast Cancer Care.
Some 72% of the women felt they were not getting the best access to new treatments.
Nearly half – 48% – said they did not get enough emotional or financial support – and would like more time to discuss their needs with healthcare professionals.
The survey, which involved 60 patients, found high levels of satisfaction with specialist nurses and oncologists.
Nurse specialist Gill Donovan, of Cardiff University, Wales, said: “These results need to be listened to. Approximately half the patients have unmet needs; we must try and ensure that all women feel supported by all professionals caring for them.
“The wider impact of advanced breast cancer is not just about the physiological effect of the disease but also encompasses the psychological, practical and spiritual aspects on both the patient and their families.”
Diana Jupp, of Breast Cancer Care, said: “We know from supporting people living with secondary breast cancer that many have specific needs that simply aren’t being met. This is a patient group who are being overlooked and these findings highlight the gaps in support.
“We will continue to campaign to improve the standards of care for people living with this complex disease so that they receive the expert support that they need.”
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